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The Importance of Social Stories

As a mom I’ve greatly appreciated the importance of social stories in our home.  Social stories are a tool used for children that help aid in communication through pictures.  Social Stories are a...

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Sudden Unexplained Death in Epilepsy – It’s Time To Talk About It

One of the many topics of conversation between Epilepsy parents is the lack of communication or discussion about SUDEP (Sudden Unexplained Death in Epilepsy) it’s not a topic any one wants to talk...

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Discovering and Diagnosing Anaphylaxis

Anaphylaxis is a life threatening allergic reaction.  The reaction can result in a variety of symptoms including: rashes, diarrhea, vomiting, swelling, ear infections, itching, airway swelling and...

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Food Additives, What They Are and Why To Avoid Them

Unknown to most consumers, the FDA does not rule out toxins or other chemicals that can and do wreak havoc on our health. It is up to consumers to be food wise and additive savvy. The list below is...

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Understanding Primary Immunodeficiency for PI Awareness Month

April, among other things, is Primary Immunodeficiency (PI) Awareness Month. Although often represented by the blue ribbon, the PIDD community is also one of the “zebra” disorders.  Doctors usually...

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Brain Tumors – Common Symptoms, Diagnosis and Life After

There are a few things we hear that strike fear deep in our heats, and the words, “You have a brain tumor” is one such statement.  What most of us don’t know, is that a brain tumor does not necessary...

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Causes, Signs and Symptoms of Stroke

I am that Mother who has been known to yell, “If you don’t stop bugging your brother you are going to cause me to have a stroke!”  But what do we really know about stokes and do you know that up to 80%...

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What to You Should Know About Hydrocephalus – September is Hydrocephalus...

Commonly referred to as water on the brain, hydrocephalus is a condition where an excess of cerebrospinal fluid (CSF) builds up in the brain widening the ventricle spaces, putting potentially harmful...

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Craniofacial Syndromes

We’ve probably all heard of cleft lip or cleft palate. But have you heard of Treacher Collins Syndrome? Hemifacial Microsomia/Goldenhar Syndrome? Apert Syndrome? Craniosynostosis? Pfeiffer Syndrome?...

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Understanding Chiari Malformation

Aronold-Chiari malformation is a form of hydrocephalus that is usually not discovered until adulthood. The reason for this is though it is present from birth, as a rule individuals will not have issues...

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Remembering Adam and Amy: October Down and Rett Syndrome Awareness Month

When my oldest son went to kindergarten I held my breath, he was not great at social skills and did not make friends well.  I was thrilled when he started coming home from school with stories of Adam,...

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Horsing Around in Therapy – What is Hippotherapy?

When you are the parent of a disabled child, one of the first things you learn is there are more choices of therapy than you have the time or money to invest in. Your best bet is gain advice from...

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